I received an advance copy of, Patience, by Victoria Scott. This book is so good, it really makes you think. Patience has a disease, but she can be "normal" if she starts a new trial they are doing. Her family is divided, and Patience cannot speak for herself.

I was quite conflicted with this novel as I did find it held my attention throughout but I was a little uncomfortable with the subject matter. Patience is a 30 year old woman who has Rett's Syndrome. She is unable to speak or move unaided and requires 24 hour care. The book flips between how it affects her parents and sister as well as chapters from Patience's own point of view. This is what makes me a little uncomfortable. The author has a sibling with Rett's Syndrome and is making assumptions about what they would say- they're a burden, they're ugly and a whole host of other unpleasant remarks. The main plot of the book is that Patience's family choose to go for experimental drug treatment to try and reverse the condition. It's a very personal and sensitive subject but the lightness and rom-com vibe of the book doesn't sit well with the implications of the family assessing whether they think Patience's quality of life is enough.