Beyond The Pale

Folklore, Family and the Mystery of Our Hidden Genes

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Pub Date 11 Apr 2016 | Archive Date 23 Dec 2016

Description

Emily’s story begins on St. Stephen’s Day, 2010, in St. John’s, Newfoundland when she gives birth to a baby girl named Sadie Jane with a shock of snow-white hair. Within 3 months Sadie is diagnosed with albinism, a rare genetic disorder where pigment fails to form in the skin, hair and eyes, with accompanying maladies such as photophobia and partial blindness.

Emily is drawn to understanding her child's differences by researching the cultural beliefs associated with albinism worldwide; a journey that takes her to a faraway continent, through her own family tree, and all the while unearthing discoveries that vacillate between beauty, amazement and horror.

Emily’s story begins on St. Stephen’s Day, 2010, in St. John’s, Newfoundland when she gives birth to a baby girl named Sadie Jane with a shock of snow-white hair. Within 3 months Sadie is diagnosed...


Advance Praise


‘An extremely necessary and moving book examining our human need to explain where it is we come from: the stories and tales we tell each other to bring communities together, and the ones we tell to tear them apart. From folklore to family, from genetics to hearsay, Emily Urquhart’s Beyond the Pale is one of the most powerful non-fiction books I've ever read. Read it and buy copies for everyone you know.’ – Jen Campbell – author of Weird Things Customers Say in Bookshops and The Bookshop Book
‘A graceful, perceptive rendering of a misunderstood condition.’ – Kirkus Reviews
‘Beyond the Pale is a powerful story about maternal love, the long reach of family and the ways – good and evil – we react to disability.’ – Katherine Ashenburg, author of The Dirt on Clean: An Unsanitized History
‘Beyond the Pale is a brave, thoughtful, clear, and always graceful journey through the terrifying randomness of genetics and the unexpected ways genetic anomalies can mark not just children, but all the lives around them. Best of all, it ends with a surprise – one that will interest anyone thinking of having a family.’ – Ian Brown, author of The Boy in the Moon: A father’s search for his disabled son

‘An extremely necessary and moving book examining our human need to explain where it is we come from: the stories and tales we tell each other to bring communities together, and the ones we tell to...

Available Editions

EDITION Other Format
ISBN 9781909762336
PRICE £14.99 (GBP)

Average rating from 3 members