A Memoir of Healing
by K. Jane Lee, MD
This title was previously available on NetGalley and is now archived.
Pub Date 21 Sep 2021 | Archive Date 9 Oct 2021
Ten16 Press, Independent Book Publishers Association (IBPA), Members' Titles
As a pediatric critical care physician and an ethicist, Jane Lee was accustomed to caring for children with a range of serious conditions and disabilities, and felt comfortable helping families navigate decision-making for these children. When a complicated delivery leaves her second child with a severe brain injury, she finds that everything she learned about disability and personhood as a physician and ethicist is no help as a parent.
This book allows the reader to walk alongside the author as she struggles to bond with and love her child, as she reconciles what is happening at home with her ongoing role as a physician to patients and families in similar circumstances, and as she shifts from the medical perspective of disability that sees an impaired body to the mother’s perspective that sees the beauty and value in the person that is her child.
A Note From the Publisher
"Dr. Lee’s unique perspective as a physician and mother offers a vulnerable behind-the-scenes look at what it means to unexpectedly be thrust into the role of a parent of a child with medical complexity. This book is a must-read for health care professionals as well as anyone interested in an unforgettable story of the healing power of a mother’s love and devotion."
—Christine Schindler, Director of the Pediatric Acute Care Graduate Program and Co-Director of the Dual Pediatric Primary Care and Acute Care Graduate Program at the Marquette University College of Nursing
"Distinctly relatable, heartbreakingly raw—Lee cuts to the very core of what it is to be human in the aftermath of the unexpected. She has masterfully crafted a book for anyone who has ever questioned what it means to be “normal.” A rare firsthand account of life beyond the edge of expectation and the power of acceptance."
—Dr. Olivia Davies, Founder of the Medical College of Wisconsin Common Read Program, Resident Physician at Massachusetts General Hospital
"Equal parts heartbreaking and heartwarming, Catastrophic Rupture: A Memoir of Healing shares author Dr. K. Jane Lee’s incredible journey from despair to acceptance to healing and joy as she unapologetically reveals the complicated challenges and miraculous gifts of raising a child born with a severe disability. Candidly written, this book will provide comfort to parents with similar circumstances, and empathy and understanding for the loved ones who support them."
—Amy E. Reichert, author of The Optimist’s Guide to Letting Go