"Endometriosis from Harm to Hope: A Chronic Illness Guide, is honest, vulnerable, and realistic. This book will serve as more than just a guide - it is a lifeline. Berna’s expertise as both a mental health professional and leading disease advocate shines through in every chapter, making the book an essential read for anyone with endometriosis or supporting someone who lives with it, as well as fellow practitioners who may treat those with the disease. In a field saturated with mere clinical analysis or overly simplistic self-help rhetoric, Berna’s work is refreshingly and deeply compassionate and genuinely useful. This is the book the endometriosis community has needed for far too long."

Heather Guidone, BCPA, Surgical Program Director, Center for Endometriosis Care

"Endometriosis from Harm to Hope: A Chronic Illness Guide is exceptionally well done in my view. Casey speaks the truth of those with endometriosis, validating their experience and arming them with information with which to make better choices, let alone filling an emotional damage gap pretty much most have felt. I have read a lot of work over the last 39 years and this takes the cake!!"

Nancy Petersen, RN, Co-founder of the first LAPEX program for the complete excision of endometriosis with David Redwine MD, Founder Nancy’s Nook Endometriosis Education, Facebook

"Endometriosis from Harm to Hope: A Chronic Illness Guide is one of the most rigorous, honest, and necessary books on endometriosis I have read. Berna seamlessly weaves scientific evidence, lived experience, and structural critique to expose how racism, sexism, and entrenched power dynamics in medicine shape delayed diagnosis, inadequate care, and poor outcomes for people with endometriosis. What makes this book especially powerful is its refusal to separate data from humanity. Each chapter centers patient voices while equipping readers with deeply researched, practical knowledge. Even as someone immersed in women’s health research, I learned an extraordinary amount from this book. It is both an indictment of the systems that fail patients and a roadmap toward informed, empowered care."

Leah Chapman, PhD, MPH, Founder & Executive Director, Women’s Health Research & Action Center

"Casey Berna’s Endometriosis: From Harm to Hope is truly the chronic illness guide its title promises. In a world saturated with misinformation, this book offers clarity, validation, and support for endometriosis patients at every stage—from the newly diagnosed to those who are informed and ready to self-advocate. For medical professionals, it provides an honest window into the lived experiences of a community still struggling for answers and relief. Casey thoughtfully explores the realities of treatment, the barriers to diagnosis, and the systemic obstacles to proper care, all while weaving in powerful stories from fellow endo warriors that will have readers thinking, “This sounds like my story,” again and again. This book deserves to be in the hands of everyone affected by this ruthless disease, because for many, it will be more than a book—it will be a lifeline."

Jill Fuersich, Founder, Endowarriors Support Network

"Casey Berna’s book offers a thoughtful, practical, and deeply validating perspective on navigating endometriosis. “Endometriosis from Harm to Hope: A Chronic Illness Guide” confronts—with clarity and precision—the entrenched delays, misconceptions, and incomplete surgical approaches that continue to harm patients. Equally powerful is the compassion with which it affirms their pain, their complexity, and their extraordinary resilience.

As a reproductive surgeon who has devoted a career to advanced endometriosis care, I can attest that outcomes improve dramatically when patients are fully informed, validated, and supported by a truly multidisciplinary team. This book equips them with the knowledge and agency required to seek that level of care—and it challenges clinicians and health-care institutions to meet the standards that modern endometriosis management demands.

This work elevates the conversation and advances the field. I will be recommending it without reservation.

Antonio R. Gargiulo, MD, Gynecologic Robotic Surgery Pioneer of Harvard Medical School, Director of Advanced Reproductive Surgery at Fertility Centers of New England, Boston

"Endometriosis: From Harm to Hope is the book patients have been waiting for and the medical system urgently needs. Casey Berna bridges lived experience, trauma-informed mental health care, and hard clinical truths to expose how deeply endometriosis has been misunderstood and mishandled. This is not just a guide. It is an imperative. Empowering and educating patients while calling on providers to do better. It belongs in the hands of anyone touched by endometriosis and anyone responsible for caring for them."

Shannon Cohn, Director & Producer, Below the Belt & Endo What?, Co-Founder Project Endo